It has been a week of pure Hell!
On Tuesday I recieved a call from J's school, he had a headache and could they give him some Calpol? Yes they could of course.
Then I checked his blood pressure...I did it three times as is recommended and took the best of three which was 148/96 - so sky high. I rang my GP with a bit of a sinking heart because I knew the advice was going to be "stop the Mediknet", the drug which allows J to focus in school and which helps him deal with the sensory overload a normal classroom brings.
I stopped the Mediknet and the next day in school was a disaster, J simply could not cope. Even worse he had a part in the school concert which he had been so looking forward to. He managed half his part before all went wrong, the children accidentally missed a tiny section of the play out; not a huge thing by any stech of the imagination but it was disasterous for J whose autism does not allow for changes easily. So J became confused and bewildered, he went onto the stage when he should not have been there, nothing too wrong in that as he simply took part in the singing and then left the stage when he realised he should not be there. He went to his 1-1 and I could see he was becoming upset and starting to cry, his lovely 1-1 (Sally) tried to help him but he would not be consoled and so his class teacher took him out and the child who did the part at the previous concert took over.
By 1.40pm the school were on the phone, could I please come and collect J as he was at risk of injuring himself (and others). I went and collected J who was in the medical room when I got there and active as anything, when he saw me he became emotional and started to cry, he sat on my lap and cuddled into me with great heaving sobs and kept repeating "I'm sorry, I'm sorry, I'm sorry". It was hideous.
The next day we had a meeting with the headteacher, J's Dad drove up from Somerset to be there too.
We decided along with the headteacher and with the SENCO that J was unlikely to get anything out of attending school for the final two days and so he spent those two days with me as "authorised absence". Naturally in the calmer and quieter environment of home he was easier to deal with...and we had the Lego out, he bounced on the trampoline and we read.
By Friday I had managed to speak to the paediatrician and an appointment was arranged for 25th July and I heaved a sigh of relief. The tension I had felt for the previous few days began to ease although I still felt an awful tightness about my chest but it was better now I knew an appointment was in place.
Then the phone rang......
A parent who I know rang me in my capacity as Governor, she didn't kno what to do but there had been a lot of complaining on Facebook regarding the school's reward scheme and halfway down the responses was a parent stating that "I bet that little shit who ruined the Yr 4 concert got a reward, he was on stage when he should not have been and ruined the hard work of all the other children".
Initially I put this down to the ramblings of someone who did not know J's diagnosis....until the name was passed on. I was stunned, this parent has a child with a disability herself and is very nice to my face outside the schoolgates and even worse she knows very well the diagnosis J has.
J's Dad was fuming and sent her a message via Facebook pointing out that J was autistic and telling her that referring to him (or any child) as "a little shit" was hideous. Her response was interesting...
She was not apologising
J spoiled the hard work of all the other children
J misbehaved and got away with it
She "knows" about special needs as she has a child with special needs herself (so that qualifies her obviously to make ignorant comments).
The school should not have let J take part if he was distressed
The school were at fault.
So I am uptight all over again...but I am not letting this get to me as I have the whole summer to get through yet. I have copies of her messages (and all the others complaining about the school) and they will be going to the headteacher as soon as I get back.
But it's interesting.......she is so nice to my face....but evidently not behind my back and now I am wondering how many others are the same.